Sunday 24 June 2007

UNDERSTANDING ME

There is an urgent need for Bio-Medical research into ME.

ME is a REAL illness!!

At present there is NO diagnostic test for ME.

ME is a potentially disabling and chronic condition affecting the central nervous system and immune system.

Here are some of the symptons:

Nausea, abdominal pain, IBS, muscle pain, joint pain, sleep reversal, chronic headaches & sore throats, inability to concentrate, memory disturbance, severe dizziness, severe chest pain that can only be described as having a heart attack on a nightly basis, night sweats, hot and cold extremities, mouth ulcers, hair loss, flu like symptons 24/7, heart palpitations, difficulty with vision and problems with balance.

This is just a few of the symptons that my 14yr old son David has to live with everyday!!

Can you imagine feeling there is nothing you can do??
Can you imagine feeling hopeless?
Can you imagine loneliness and isolation???
Can you imagine living 24/7 like this??

Can you imagine what this is like for ME sufferers??
Can you imagine being a carer of an ME sufferer??
Can you imagine not having a carer???

ME is still very misunderstood and often met with scepticism and disbelief by medics, other proffessionals and society in general!!

This illness has been around for centuries and has increased considerably over the past 50 years!!

To date there still is No Funding from the government for a diagnostic test therefore there is NO CURE!!

I as a mum am trying to raise awareness to this terrible debililiting illness and now have sent letters to Stormont to plead with them for HELP!!!!

My last words for today are if you know anyone with ME, Be there for them , Believe them and SUPPORT THEM!!!!!!!

Thank you!!!

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