Dear All,
Criona Wilson, mother of Sophia Mirza, has just posted up a new webpage about the World Health Organisation' s classification of ME and its relevance to the NICE guidelines.
At the bottom of the page is a link to lists of MPs, Lords, media and the WHO itself.
http://www.sophiaandme.org.uk/ w.h.o.%20and% 20m.e..html
Permission to repost
Wednesday, 27 May 2009
I was a RAF high-flyer .. now I can barely get out of bed
http://www.thescottishsun.co.uk/scotsol/homepage/news/article2433959.ece
Anouncement from the MEA website - may be reposted
As part of the information gathering process in relation to establishing a UK post-mortem and tissue bank for ME/CFS research, Dr Charles Shepherd visited the Medical Research Council's Brain Banks in Edinburgh last week - where he met with Dr Colin Smith and Professor James Ironside.
The Edinburgh Brain Banks currently collect, store and provide tissue to researchers who are looking at a number of diseases - in particular HIV/AIDs (where tissue in addition to brain and nervous system is collected) and CJD. They also collect brain tissue from people without neurological disease for control purposes.
Dr Shepherd and Tony Britton will both be attending the Invest in ME Conference on Friday this week where they will have an information leaflet that summarises the current state of affairs regarding the establishment of a UK brain and tissue bank for ME/CFS research. Dr Shepherd and Tony Britton will also be very happy to talk to anyone who is interested in this aspect of ME/CFS research during breaks at the meeting.
Fundraising information for the MEA tissue bank initiative can be found at: www.walkingtheamazon.com - you can donate money via a link on the MEA charity page on this site or via the 'Just Four Quid' link on the MEA website: http://www.meassociation.org. uk
ENDS
The Edinburgh Brain Banks currently collect, store and provide tissue to researchers who are looking at a number of diseases - in particular HIV/AIDs (where tissue in addition to brain and nervous system is collected) and CJD. They also collect brain tissue from people without neurological disease for control purposes.
Dr Shepherd and Tony Britton will both be attending the Invest in ME Conference on Friday this week where they will have an information leaflet that summarises the current state of affairs regarding the establishment of a UK brain and tissue bank for ME/CFS research. Dr Shepherd and Tony Britton will also be very happy to talk to anyone who is interested in this aspect of ME/CFS research during breaks at the meeting.
Fundraising information for the MEA tissue bank initiative can be found at: www.walkingtheamazon.com - you can donate money via a link on the MEA charity page on this site or via the 'Just Four Quid' link on the MEA website: http://www.meassociation.org. uk
ENDS
Lismore artist is awarded 2009 ArtLinks Bursary
http://www.munster-express.ie/entertainment/art/lismore-artist-is-awarded-2009-artlinks-bursary/
Mum-to-be Sarah also facing test of coping with ME
http://www.echo-news.co.uk/echofeatures/health/4358973.Mum_to_be_Sarah_also_/
A LEEDS nurse and an ME patient have written a book which they hope will > help people cope with Chronic Fatigue
http://www.yorkshirepost.co.uk/health/Fighting-back-in-the-battle.5264118.jp
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