love the website and photos especially the tall girl third from left at the back she's the best of the bunch lol my blisters are healed and I have lubricated my aching joints with butter but it was worth it and I'd do it again tomorrow if it helps David and all ME sufferers
Hi Antoinette, Site is great and gives a really good insight into how our child's life, our family, and extended family lives have been affected by this dreadful illness. We keep David in our hearts down here in Naas as we know exactly what you and your family are experiencing. Try and keep positive although it is difficult at times and you know HE only sends difficult times to those he feels will handle them. A friend said that to me when Eoin was at his lowest and I keep telling myself that - I am strong, we are strong and we will get through this very difficult time.
ME (Myalgic Encapalomyelitis). ME is usually referred to as the sleepy sickness. ME is a serious neurological illness. There is NO known CURE. It affects 250,000 people in the UK, including children. ME has had bad press as there is not yet a diagnostic test.Many kids can miss out on education are completely isolated from the outside world.ME sufferers cannot live a normal life.
If anything is to improve for ME sufferers, I think one of the first port of call is to get the NHS to work together to reconise and support the extreme debilitation that sufferers of this terrible illness have to face on a daily basis.
Kids who develop ME in their teens go into adulthood having lost all their social contact,living each day in pain and very little understanding or help from the medical profession.
If you are looking for any more information e-mail me antoinette_christie@yahoo.co.uk
DON'T WALK BEHIND ME,I MAY NOT LEAD.
WALK BESIDE ME AND BE MY FRIEND!!!
http://video.google.co.uk/videoplay?docid=-5597775473582571000
2 comments:
love the website and photos especially the tall girl third from left at the back she's the best of the bunch lol my blisters are healed and I have lubricated my aching joints with butter but it was worth it and I'd do it again tomorrow if it helps David and all ME sufferers
Hi Antoinette, Site is great and gives a really good insight into how our child's life, our family, and extended family lives have been affected by this dreadful illness. We keep David in our hearts down here in Naas as we know exactly what you and your family are experiencing. Try and keep positive although it is difficult at times and you know HE only sends difficult times to those he feels will handle them. A friend said that to me when Eoin was at his lowest and I keep telling myself that - I am strong, we are strong and we will get through this very difficult time.
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