May 12, 2009 - Carers Demo

Hi -
Permission to repost


May
12, 2009 - Carers Demo

Has
anyone given any thought to the above, there are a few who think that carers
are a good untapped resource when it comes to campaigning, and all it would
take would be one carer per sufferer to give up one day next year? There are an
estimated 25,000 in London alone and tens of thousands elsewhere in the UK.


The
idea is one carer per sufferer to attend a rally/demo in London on May 12 next
year, enough carers could actually bring London to a stop or clog up the
pathways, keeping on the move and continuously crossing the roads at designated
crossing points. By keeping on the move and to the pavements there could be no
legal problems.

The
idea currently is as follows


One
sufferer pre carer attends London on the day and make their way to Whitehall,
each carrying two A4 photos or silhouettes representing the person they care
for along with that persons Christian Name, along with 2 or 3 letters signed by
themselves (wording to be decided) asking for funding for Biochemical research,
(individual letters are better than a petitions).

A
static group to remain in Whitehall and receive two letters and 1 silhouette
from each carer as they pass, the times can be staggered. The carers can then
make their way to Parliament Square and Parliament Green, ready for lobby time.


At
a set time there can be a presentation of 1 letter and 1 silhouette to 10
Downing Street, and 1 letter to the DoH, the presentation party and any other
remaining carers make their way then to Parliament to join the rest.





Lobby
time and the main presentation group with as many as possible going into
Parliament to hand the last letter and silhouette to their MP or one willing to
accept it. After which at a certain time we can all regroup on the green or square
prior to making our way home.


Arriving
in small groups and staggered means that anyone with only a few hours to spare
and living in London may well have a chance to attend and make a difference.


The
above is a suggestion only; nothing is confirmed or set in tablets of stone,
there may be those who think it totally unworkable, there may be those who think
it worth a try, for those that do how many of you are there and are you willing
to make the trip to London? Is it worth it full stop?




Trev

Cognitive Behaviour Therapy (CBT

Thanks again to John GreenSmith for bringing this to our attention

Letter in response to the conclusions of a conference, this week, in East Anglia, that the view that
Cognitive Behaviour Therapy (CBT) is more effective than other treatments is just a myth and could
be wasting millions of pounds.

here http://www.mefreeforall.org/2008-Jul...

The Daily Mail version of the story is here http://tinyurl.com/62t3td

The story, quoting Professors Mick Cooper & Robert Elliott of Strathclyde University also appeared in The Glasgow Herald.

here http://tinyurl.com/5oxv9d

If you wish to reply, the e-mail addresses are:

letters@dailymail.co.uk

letters@theherald.co.uk

You ain't crazy. It might be Chronic Fatigue Syndrome

Letter #4 in response to "You ain't crazy. It might be Chronic Fatigue Syndrome" in Frost Illustrated, Fort Wayne, Indiana, USA, 8 July 2008 from Dr Mary Schweitzer, here

http://www.mefreeforall.org/2008-Jul...

with the others on the same subject.

Brilliant, personal account, strongly supported by firm scientific evidence. Just how it should be.

We have some quite similar medical history, Mary and very similar views about this dreadful illness. Do please keep writing.

The good news is that 2 of these writers have heard that they may be published. See, it works. Any more? Or some new blood maybe?

To remind you, the original News item is here

here http://tinyurl.com/6a6yfs

and if you have a reply, you need to make it using the online form

here http://www.frostillustrated.com/send...

Cheers
John
drjohngreensmith@mefreeforall.org

APPG on ME

MAY BE REPOSTED

All four transcripts of the presentations on child protection issues given to the July meeting of the All Party Parliamentary Group (APPG) on ME at the House of Commons are now available on the MEA website:

http://www.meassoci ation.org. uk/content/ view/603/ 70/

Summary of APPG meeting:

http://www.meassoci ation.org. uk/content/ view/601/ 70/

ENDS

£2000, to MERUK,

"We have just handed over £2000, to MERUK, to help with research. Thank you to all who helped raise this money during the month of MAY. Your generosity will never be forgotten.

Rail transport for the disabled - your views are wanted in a research survey

The MEA has been asked to give some publicity to a new piece of research that is seeking the views of people with disabilities and chronic health problems who travel by train in the South East, or would like to travel by train but are unable to do so for various reasons.

More information on the survey at:

http://www.meassoci ation.org. uk/content/ view/602/ 70/

in response to an article about Hypocondria,

Two letters already

here http://www.mefreeforall.org/2008-Jul-Sep.1017.0.html#c3717

and

here http://www.mefreeforall.org/2008-Jul-Sep.1017.0.html#c3716

in response to an article about Hypocondria, which drags in a mention of Chronic Fatigue Syndrome and, by doing so -- even if only by implication -- suggests that it is not of physiological but psychatric origin.

Full story here http://tinyurl.com/667wrk

If we do not respond to stories like these it may be thought that we agree, or are at least acquiescent about the view that it is "all in the head" (incidentally an earlier version of her story was called just that).

If you do have a response, click here http://www.thevillagenews.com/contact.php
and tick the box for "A letter for the Editor"
and type or copy & paste your letter.

It may help others to get published and we would always want to publish it on our site, so it's never wasted effort.

Best wishes
John
drjohngreensmith@mefreeforall.org