Thursday, 29 December 2011
I fought off ME
http://www.thisislondon.co.uk/theatre/article-23920911-michael-crawford-i-fought-off-me-to-make-wizard-comeback-to-the-west-end.do#.Tvw7EUXsc9c.facebook
Belfast ME Support Group Meeting
Belfast ME Support Group Meeting
Tuesday 3rd January 2012
7-8pm
The Emerald Roadhouse
Finaghy Road North, Belfast
New Members welcome
Contact Antoinette Christie / Jeanette Marley
Tuesday 3rd January 2012
7-8pm
The Emerald Roadhouse
Finaghy Road North, Belfast
New Members welcome
Contact Antoinette Christie / Jeanette Marley
Thursday, 1 December 2011
BREAKING NEWS
Dr William Weir has just informed us that he will be attending our ME SUPPORT GROUP on Tuesday 6th December.
Dr Weir works part-time as a Consultant Physician in the NHS but he also runs a private ME/CFS Clinic at 10, Harley Street, London.
Dr Weir works part-time as a Consultant Physician in the NHS but he also runs a private ME/CFS Clinic at 10, Harley Street, London.
Belfast ME SUPPORT GROUP
On Tuesday 6/12/11, Stuart Drennan will be attending our group and would like to talk to as many people as possible with regards to what it actually feels like to live with ME - he is currently working on a script for a short film with regards to ME. Stuart is a local writer and film maker, who is also a close family friend. There is no obligation for anyone to speak to him, but he would really appreciate your feedback as he is concerned that without speaking to actual sufferers he will not get a true picture of the emotional impact of this illness on individuals.
Stuart has worked on several TV series including Seacht, Maru, In Cold Blood, as well as a short films "Annalogue Love", and "Infliction".
We would be very grateful if as many people as possible could take some time to talk to Stuart about their experiences.
Stuart has worked on several TV series including Seacht, Maru, In Cold Blood, as well as a short films "Annalogue Love", and "Infliction".
We would be very grateful if as many people as possible could take some time to talk to Stuart about their experiences.
Monday, 11 July 2011
ME support group
Familyfights4me will be holding their first ME support group meeting on Tuesday August 2nd at 7pm in the Emerald Roadhouse, Finaghy Road North, Belfast
http://www.theemeraldroadhouse.com/
Any ME Sufferers wishing to attend please contact me to book a place
http://www.theemeraldroadhouse.com/
Any ME Sufferers wishing to attend please contact me to book a place
Sunday, 10 July 2011
Message from Event Organiser re Judy Mikovits Talk in Belfast
It was a great honour for us all to meet Dr. Judy Mikovits in Belfast. Her quiet determination was clear for all to see and also her committment to helping patients all over the world.
She had time and patience to answer any questions we put to her and she left us with the greatest gift of all....HOPE for a better future.
Whatever the eventual outcome of the xmrv story, there will be no going back from the progress that has been made since this discovery in 2009.
The May conference has put N.Ireland on the M.E. map and this is just the beginning!! Watch this space!
I feel I am so blessed to have good friends like Antoinette and Jeanette, thank you both for all your hard work and help with everything I do.
Joan McParland
She had time and patience to answer any questions we put to her and she left us with the greatest gift of all....HOPE for a better future.
Whatever the eventual outcome of the xmrv story, there will be no going back from the progress that has been made since this discovery in 2009.
The May conference has put N.Ireland on the M.E. map and this is just the beginning!! Watch this space!
I feel I am so blessed to have good friends like Antoinette and Jeanette, thank you both for all your hard work and help with everything I do.
Joan McParland
Saturday, 2 July 2011
Tuesday, 28 June 2011
Professor Malcolm Hooper’s further concerns about the PACE Trial article published in The Lancet
http://www.meactionuk.org.uk/Normal-fatigue.htm
Sunday, 12 June 2011
Chronic Fatigue syndrome-misnamed-misdiagnosed-misunderstood
http://www.whchronicle.com/2011/06/chronic-fatigue-syndrome-misnamed-misdiagnosed-misunderstood/
Monday, 6 June 2011
Belfast Marathon
I would like to say thank you to all who sponsored familyfights4me on doing the Belfast Marathon, a grand total of £1091.00 is the total so far for ME Research uk.
The 6th Invest in ME International ME/CFS Conference 2011
http://www.investinme.org/IiME%20Conference%202011/IiME%20International%20ME%20Conference%202011%20Conference%20Report.htm
Tuesday, 31 May 2011
Professor Malcolm Hooper’s Detailed Response to Professor Peter White’s letter to Dr Richard Horton about his complaint re: the PACE Trial articles pu
http://www.meactionuk.org.uk/Comments-on-PDW-letter-re-PACE.htm
Virologist Dr Antoinette C. van der Kuyl: Evidence strongly suggests that XMRV is truly infecting and replicating in humans
http://niceguidelines.blogspot.com/2011/05/virologist-dr-antoinette-c-van-der-kuyl.html
Researchers stand by findings linking XMRV to chronic fatigue syndrome
http://www.latimes.com/health/boostershots/la-heb-xmrv-chronic-fatigue-20110510,0,1125656.story
Wednesday, 25 May 2011
"Arnie's Story": A Child's CFS, Misdiagnosed as Munchausen's by Proxy
http://www.prohealth.com/me-cfs/library/showArticle.cfm?libid=16108&B1=EM042711C&utm_source=EM042711C&utm_medium=em&utm_campaign=MECFS&slvor=10628.1037965.0.1.0.37117&eid=fighting_fatigue%40hotmail.com
Please keep voting
http://apps.facebook.com/chasecommunitygiving/charities/205904991-whittemore-peterson-institute-for-neuro-immune-disease?src=vote_share
Jane Colby of The Young ME Sufferers Trust
You can now follow Jane Colby of The Young ME Sufferers Trust on Twitter @JaneCColby
Neglected
Hi all have been neglecting my blog abit and feeling pretty guilty :(
Now I'm back watch this space :)
Now I'm back watch this space :)
Subscribe to:
Posts (Atom)