Sunday, 19 September 2010
Robbie Williams fighting mystery illness
http://www.dnaindia.com/entertainment/report_robbie-williams-fighting-mystery-illness_1439774
Wednesday, 15 September 2010
I've been confined to my room for 14 years, says ME sufferer Amy
http://www.thisisleicestershire.co.uk/news/ve-confined-room-14-years/article-2644795-detail/article.html
Local family feels vindicated by breakthrough research
http://www.mountainx.com/news/2010/091510local-family-feels-vindicated-by-breakthrough-research
Thursday, 9 September 2010
Evidence of cardiovascular problems in ME/CFS that NICE disregarded
http://www.meactionuk.org.uk/Cardiovascular.htm
Chronic fatigue syndrome 'genuine illness'
http://news.bbc.co.uk/today/hi/today/newsid_8975000/8975412.stm
Scientists claim ME illness is NOT 'all in the mind' Read more: http://www.dailymail.co.uk/health/article-1309839/Scientists-claim-ME-illness-NOT-min
http://www.dailymail.co.uk/health/article-1309839/Scientists-claim-ME-illness-NOT-mind.html
Scientist gets corrected on the limitations of using PCR in XMRV
http://www.youtube.com/watch?v=G4yl_UgbrrI
Bulletin of IACFSME 2010
http://www.iacfsme.org/BULLETINSUMMER2010/Summer2010SampsonAnalysisCohortTrial4481/tabid/435/Default.aspx
New research sheds light on ME
http://www.activequote.com/health-insurance/news/New-research-sheds-light-on-ME.aspx
Chronic fatigue syndrome may be caused by virus, Scottish researchers find
http://www.dailyrecord.co.uk/news/health-news/2010/09/08/chronic-fatigue-syndrome-may-be-caused-by-virus-scottish-researchers-find-86908-22545645/
Lets raise awareness & get ME on TV
http://www.facebook.com/home.php?#!/group.php?gid=397706469637&ref=mf
Study links ME to virus
http://www.webmd.boots.com/news/20100906/study-links-me-to-virus?src=RSS_PUBLIC
Chronic fatigue syndrome may be caused by virus, Scottish researchers find
http://www.dailyrecord.co.uk/news/health-news/2010/09/08/chronic-fatigue-syndrome-may-be-caused-by-virus-scottish-researchers-find-86908-22545645/
Sunday, 6 June 2010
Belfast Marathon
A massive Total of £1607.00 has been raised for ME Research by family and friends who took part and raised much needed funds in the Belfast Marathon.
Many Thanks to all who ran the marathon and to everyone who donated, your generosity will make a difference to all who are suffering from this awful debilitaing illness.
Many Thanks to all who ran the marathon and to everyone who donated, your generosity will make a difference to all who are suffering from this awful debilitaing illness.
Thursday, 27 May 2010
My Facebook Link
http://www.facebook.com/people/Antoinette-Christie/1013288978#!/group.php?gid=300490079720&ref=m
Children with CFS/ME
http://www.facebook.com/people/Antoinette-Christie/1013288978#!/group.php?gid=300490079720&ref=m
Order your 2010 Conference DVD now.
http://www.investinme.org/IiME%20International%20ME%20Conference%202010%20-%20DVD%20Orders%20PreProduction.htm
Interview with Lorraine Kelly and Kay Gilderdale on GMTV this was supposed to be shown on ME Awareness day
http://www.gm.tv/videos/?vxClipId=1441_gmtv_9165
London Conference 2010
http://cfspatientadvocate.blogspot.com/2010/05/london-conference-may-24-2010.html
Monday, 25 January 2010
Please feel free to make a donation no matter how small
http://www.justgiving.com/Antoinette-Christie/
Friday, 15 January 2010
Cure 4 ME
Cure 4 ME Bulletin
Thank you for reading!
Help the cause:
I Read This
FOR IMMEDIATE RELEASE
Frankie Vigil
R&R Partners for
Whittemore Peterson Institute
775-336-4555 775-336-4555
frankie.vigil@rrpartners.com
Whittemore Peterson Institute Announces Availability of Updated XMRV Testing
Reno, Nev. - In October 2009, together with the Cleveland Clinic and National Cancer Institute,
the Whittemore Peterson Institute published findings in Science regarding the discovery of
XMRV in the blood of Chronic Fatigue Syndrome (CFS) patients. The testing method, validated
in multiple other labs using positive control samples, uses a unique process that was extensively
peer reviewed before publication and provides the most accurate results available.
This virus culture test is the same method used in the Science publication, and the only
scientifically validated methodology to find XMRV. Some labs, including the recent study
published in the U.K., have used non-validated PCR and whole blood PCR assays. At this time
no single PCR or whole blood assay alone has been validated as accurately detecting XMRV,
and is therefore not an appropriate way to study or diagnose the presence of the virus.
WPI has licensed the latest version of the test to Viral Immune Pathways Diagnostic
Laboratories (VIP Dx) in Reno, Nev. The non-exclusive license allows patients and their doctors
access to a reliable diagnostic tool. The newly refined test uses a virus culture methodology that
yields more reliable results in one test at a lower cost to patients.
“Our mission at WPI is to discover bio markers of disease and translate those discoveries into
accurate diagnostics and effective treatments for patients,” said WPI Founder and President
Annette Whittemore. “We continue to talk to other clinical laboratory companies, both nationally
and internationally, in order to make the test available to a wider audience.”
WPI Research Scientist and co-author of the Science paper, Dr. Vincent Lombardi, is providing
technical assistance and oversight of the VIP Dx testing. In exchange for the non-exclusive
license, VIP Dx will pay a royalty to WPI for each test it conducts.
Continued
“We structured the licensing contract to be sure that any and all profits that might emerge at VIP
Dx from XMRV testing come directly back to WPI to benefit the research program” said
Whittemore.
Dr. Lombardi is an employee of WPI, and has no personal financial interest in VIP Dx.
Likewise, the Whittemore family put their interest in VIP Dx into a trust to benefit WPI.
The availability of these tests has a dramatic impact to the CFS/ME community. These tests
allow licensed laboratories to begin answering important questions about XMRV’s incidence in
disease and prevalence in the world. WPI hopes that this will generate further research related to
XMRV. "The institutes’ driving goal continues to be the translation of research to meaningful
results for patients, explained Whittemore.
It is still unknown exactly how XMRV impacts humans. Scientists who understand the potential
ramifications of human infection with retroviruses take the study of XMRV seriously. WPI
researchers along with many other scientists around the world are actively engaged in advancing
research in this field.
Whittemore Peterson Institute
The Whittemore Peterson Institute for Neuro-Immune Disease exists to bring discovery, knowledge,
and effective treatments to patients with illnesses that are caused by acquired dysregulation of the
immune system and the nervous system, often results in lifelong disease and disability. The WPI is
the first institute in the world dedicated to X associated neuro-immune disease (XAND), and other X
associated diseases, integrating patient treatment, basic and clinical research and medical
education.
Thank you for reading!
Help the cause:
I Read This
FOR IMMEDIATE RELEASE
Frankie Vigil
R&R Partners for
Whittemore Peterson Institute
775-336-4555 775-336-4555
frankie.vigil@rrpartners.com
Whittemore Peterson Institute Announces Availability of Updated XMRV Testing
Reno, Nev. - In October 2009, together with the Cleveland Clinic and National Cancer Institute,
the Whittemore Peterson Institute published findings in Science regarding the discovery of
XMRV in the blood of Chronic Fatigue Syndrome (CFS) patients. The testing method, validated
in multiple other labs using positive control samples, uses a unique process that was extensively
peer reviewed before publication and provides the most accurate results available.
This virus culture test is the same method used in the Science publication, and the only
scientifically validated methodology to find XMRV. Some labs, including the recent study
published in the U.K., have used non-validated PCR and whole blood PCR assays. At this time
no single PCR or whole blood assay alone has been validated as accurately detecting XMRV,
and is therefore not an appropriate way to study or diagnose the presence of the virus.
WPI has licensed the latest version of the test to Viral Immune Pathways Diagnostic
Laboratories (VIP Dx) in Reno, Nev. The non-exclusive license allows patients and their doctors
access to a reliable diagnostic tool. The newly refined test uses a virus culture methodology that
yields more reliable results in one test at a lower cost to patients.
“Our mission at WPI is to discover bio markers of disease and translate those discoveries into
accurate diagnostics and effective treatments for patients,” said WPI Founder and President
Annette Whittemore. “We continue to talk to other clinical laboratory companies, both nationally
and internationally, in order to make the test available to a wider audience.”
WPI Research Scientist and co-author of the Science paper, Dr. Vincent Lombardi, is providing
technical assistance and oversight of the VIP Dx testing. In exchange for the non-exclusive
license, VIP Dx will pay a royalty to WPI for each test it conducts.
Continued
“We structured the licensing contract to be sure that any and all profits that might emerge at VIP
Dx from XMRV testing come directly back to WPI to benefit the research program” said
Whittemore.
Dr. Lombardi is an employee of WPI, and has no personal financial interest in VIP Dx.
Likewise, the Whittemore family put their interest in VIP Dx into a trust to benefit WPI.
The availability of these tests has a dramatic impact to the CFS/ME community. These tests
allow licensed laboratories to begin answering important questions about XMRV’s incidence in
disease and prevalence in the world. WPI hopes that this will generate further research related to
XMRV. "The institutes’ driving goal continues to be the translation of research to meaningful
results for patients, explained Whittemore.
It is still unknown exactly how XMRV impacts humans. Scientists who understand the potential
ramifications of human infection with retroviruses take the study of XMRV seriously. WPI
researchers along with many other scientists around the world are actively engaged in advancing
research in this field.
Whittemore Peterson Institute
The Whittemore Peterson Institute for Neuro-Immune Disease exists to bring discovery, knowledge,
and effective treatments to patients with illnesses that are caused by acquired dysregulation of the
immune system and the nervous system, often results in lifelong disease and disability. The WPI is
the first institute in the world dedicated to X associated neuro-immune disease (XAND), and other X
associated diseases, integrating patient treatment, basic and clinical research and medical
education.
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