Three letters published in response to the "Ain't crazy" article
Jackie Leevers here
http://www.frostillustrated.com/full.php?sid=3859
John Greensmith here
http://www.frostillustrated.com/full.php?sid=3861
Hilary Patten here
http://www.frostillustrated.com/full.php?sid=3860
Well done.
Best wishes
John
Tuesday, 15 July 2008
A message from Professor Malcolm Hooper
Permission to Repost
A message from Professor Malcolm Hooper
"Attention is drawn to the recently-released apology from the Journal of
Clinical Pathology regarding the alleged retraction of the Review 'Myalgic
Encephalomyelitis: a review with emphasis on key findings in biomedical
research' by Professor Malcolm Hooper. Professor Hooper notes that the
immoderate and malicious comments which were posted on the internet
regarding his paper have been shown to be false. He is saddened that such
comments from those who profess to have the best interests of the ME
community at heart have caused distress, dismay and confusion within the
wider ME community".
------------ --------- --------- --------- --------- --------- -
http://jcp.bmj. com
http://jcp.bmj. com/misc/ hooper.dtl
The BMJ Group wishes to inform readers that a series of technical errors
resulted in the unjustified retraction of the article "Myalgic
encephalomyelitis: a review with emphasis on key findings in biomedical
research". The article's citation details remain as originally published
(J Clin Pathol 2007; 60: 466 - 471; doi:10.1136/ jcp.2006. 042408).
The Journal of Clinical Pathology offers an unreserved apology to the
author of the article, Professor Malcolm Hooper, and regrets any confusion
or distress that may have been caused.
------------ --------- --------- --------- --------- --------- -
Note: The Original Paper can now be found back on teh JCP website
http://jcp.bmj. com/cgi/content/ abstract/ 60/5/466? maxtoshow= &HITS=10& hits=10&RESULTFO RMAT=&author1= hooper&andorexac tfulltext= and&searchid= 1&FIRSTINDEX= 0&sortspec= relevance& resourcetype= HWCIT
A message from Professor Malcolm Hooper
"Attention is drawn to the recently-released apology from the Journal of
Clinical Pathology regarding the alleged retraction of the Review 'Myalgic
Encephalomyelitis: a review with emphasis on key findings in biomedical
research' by Professor Malcolm Hooper. Professor Hooper notes that the
immoderate and malicious comments which were posted on the internet
regarding his paper have been shown to be false. He is saddened that such
comments from those who profess to have the best interests of the ME
community at heart have caused distress, dismay and confusion within the
wider ME community".
------------ --------- --------- --------- --------- --------- -
http://jcp.bmj. com
http://jcp.bmj. com/misc/ hooper.dtl
The BMJ Group wishes to inform readers that a series of technical errors
resulted in the unjustified retraction of the article "Myalgic
encephalomyelitis: a review with emphasis on key findings in biomedical
research". The article's citation details remain as originally published
(J Clin Pathol 2007; 60: 466 - 471; doi:10.1136/ jcp.2006. 042408).
The Journal of Clinical Pathology offers an unreserved apology to the
author of the article, Professor Malcolm Hooper, and regrets any confusion
or distress that may have been caused.
------------ --------- --------- --------- --------- --------- -
Note: The Original Paper can now be found back on teh JCP website
http://jcp.bmj. com/cgi/content/ abstract/ 60/5/466? maxtoshow= &HITS=10& hits=10&RESULTFO RMAT=&author1= hooper&andorexac tfulltext= and&searchid= 1&FIRSTINDEX= 0&sortspec= relevance& resourcetype= HWCIT
Monday, 14 July 2008
ME Research UK DVD
*****Please Repost and Disseminate to Your Local Groups*****
ME Research UK are pleased to offer the 4-DVD set of this year’s Cambridge
ME conference for just £5 inclusive of post and packing (within the UK).
At this price why not buy extra copies for your GP, Consultant and MP?
Why not take advantage of this excellent opportunity to send this
information to as large a number of professionals as possible.
If you would like them to, MERUK will, for no extra charge, send DVDs direct
to your doctor with a covering letter. Just let us have your doctor’s name
and address and we will do the rest.
You can order your DVDs by contacting meruk@pkavs. org.uk or writing to: ME
Research UK, The Gateway, North Methven Street, Perth PH1 5PP, UK. Please
make cheques out to “ME Research UK”.
We can also take credit/debit card orders over the phone on 01738 451234
during working hours.
Full details of the presentations can be found on the MERUK website at:
http://www.meresear ch.org.uk/ archive/newhoriz ons2008.html
Sue Waddle
ME Research UK
ME Research UK are pleased to offer the 4-DVD set of this year’s Cambridge
ME conference for just £5 inclusive of post and packing (within the UK).
At this price why not buy extra copies for your GP, Consultant and MP?
Why not take advantage of this excellent opportunity to send this
information to as large a number of professionals as possible.
If you would like them to, MERUK will, for no extra charge, send DVDs direct
to your doctor with a covering letter. Just let us have your doctor’s name
and address and we will do the rest.
You can order your DVDs by contacting meruk@pkavs. org.uk or writing to: ME
Research UK, The Gateway, North Methven Street, Perth PH1 5PP, UK. Please
make cheques out to “ME Research UK”.
We can also take credit/debit card orders over the phone on 01738 451234
during working hours.
Full details of the presentations can be found on the MERUK website at:
http://www.meresear ch.org.uk/ archive/newhoriz ons2008.html
Sue Waddle
ME Research UK
Sunday, 13 July 2008
May 12, 2009 - Carers Demo
Hi -
Permission to repost
May
12, 2009 - Carers Demo
Has
anyone given any thought to the above, there are a few who think that carers
are a good untapped resource when it comes to campaigning, and all it would
take would be one carer per sufferer to give up one day next year? There are an
estimated 25,000 in London alone and tens of thousands elsewhere in the UK.
The
idea is one carer per sufferer to attend a rally/demo in London on May 12 next
year, enough carers could actually bring London to a stop or clog up the
pathways, keeping on the move and continuously crossing the roads at designated
crossing points. By keeping on the move and to the pavements there could be no
legal problems.
The
idea currently is as follows
One
sufferer pre carer attends London on the day and make their way to Whitehall,
each carrying two A4 photos or silhouettes representing the person they care
for along with that persons Christian Name, along with 2 or 3 letters signed by
themselves (wording to be decided) asking for funding for Biochemical research,
(individual letters are better than a petitions).
A
static group to remain in Whitehall and receive two letters and 1 silhouette
from each carer as they pass, the times can be staggered. The carers can then
make their way to Parliament Square and Parliament Green, ready for lobby time.
At
a set time there can be a presentation of 1 letter and 1 silhouette to 10
Downing Street, and 1 letter to the DoH, the presentation party and any other
remaining carers make their way then to Parliament to join the rest.
Lobby
time and the main presentation group with as many as possible going into
Parliament to hand the last letter and silhouette to their MP or one willing to
accept it. After which at a certain time we can all regroup on the green or square
prior to making our way home.
Arriving
in small groups and staggered means that anyone with only a few hours to spare
and living in London may well have a chance to attend and make a difference.
The
above is a suggestion only; nothing is confirmed or set in tablets of stone,
there may be those who think it totally unworkable, there may be those who think
it worth a try, for those that do how many of you are there and are you willing
to make the trip to London? Is it worth it full stop?
Trev
Permission to repost
May
12, 2009 - Carers Demo
Has
anyone given any thought to the above, there are a few who think that carers
are a good untapped resource when it comes to campaigning, and all it would
take would be one carer per sufferer to give up one day next year? There are an
estimated 25,000 in London alone and tens of thousands elsewhere in the UK.
The
idea is one carer per sufferer to attend a rally/demo in London on May 12 next
year, enough carers could actually bring London to a stop or clog up the
pathways, keeping on the move and continuously crossing the roads at designated
crossing points. By keeping on the move and to the pavements there could be no
legal problems.
The
idea currently is as follows
One
sufferer pre carer attends London on the day and make their way to Whitehall,
each carrying two A4 photos or silhouettes representing the person they care
for along with that persons Christian Name, along with 2 or 3 letters signed by
themselves (wording to be decided) asking for funding for Biochemical research,
(individual letters are better than a petitions).
A
static group to remain in Whitehall and receive two letters and 1 silhouette
from each carer as they pass, the times can be staggered. The carers can then
make their way to Parliament Square and Parliament Green, ready for lobby time.
At
a set time there can be a presentation of 1 letter and 1 silhouette to 10
Downing Street, and 1 letter to the DoH, the presentation party and any other
remaining carers make their way then to Parliament to join the rest.
Lobby
time and the main presentation group with as many as possible going into
Parliament to hand the last letter and silhouette to their MP or one willing to
accept it. After which at a certain time we can all regroup on the green or square
prior to making our way home.
Arriving
in small groups and staggered means that anyone with only a few hours to spare
and living in London may well have a chance to attend and make a difference.
The
above is a suggestion only; nothing is confirmed or set in tablets of stone,
there may be those who think it totally unworkable, there may be those who think
it worth a try, for those that do how many of you are there and are you willing
to make the trip to London? Is it worth it full stop?
Trev
Cognitive Behaviour Therapy (CBT
Thanks again to John GreenSmith for bringing this to our attention
Letter in response to the conclusions of a conference, this week, in East Anglia, that the view that
Cognitive Behaviour Therapy (CBT) is more effective than other treatments is just a myth and could
be wasting millions of pounds.
here http://www.mefreeforall.org/2008-Jul...
The Daily Mail version of the story is here http://tinyurl.com/62t3td
The story, quoting Professors Mick Cooper & Robert Elliott of Strathclyde University also appeared in The Glasgow Herald.
here http://tinyurl.com/5oxv9d
If you wish to reply, the e-mail addresses are:
letters@dailymail.co.uk
letters@theherald.co.uk
Letter in response to the conclusions of a conference, this week, in East Anglia, that the view that
Cognitive Behaviour Therapy (CBT) is more effective than other treatments is just a myth and could
be wasting millions of pounds.
here http://www.mefreeforall.org/2008-Jul...
The Daily Mail version of the story is here http://tinyurl.com/62t3td
The story, quoting Professors Mick Cooper & Robert Elliott of Strathclyde University also appeared in The Glasgow Herald.
here http://tinyurl.com/5oxv9d
If you wish to reply, the e-mail addresses are:
letters@dailymail.co.uk
letters@theherald.co.uk
Friday, 11 July 2008
You ain't crazy. It might be Chronic Fatigue Syndrome
Letter #4 in response to "You ain't crazy. It might be Chronic Fatigue Syndrome" in Frost Illustrated, Fort Wayne, Indiana, USA, 8 July 2008 from Dr Mary Schweitzer, here
http://www.mefreeforall.org/2008-Jul...
with the others on the same subject.
Brilliant, personal account, strongly supported by firm scientific evidence. Just how it should be.
We have some quite similar medical history, Mary and very similar views about this dreadful illness. Do please keep writing.
The good news is that 2 of these writers have heard that they may be published. See, it works. Any more? Or some new blood maybe?
To remind you, the original News item is here
here http://tinyurl.com/6a6yfs
and if you have a reply, you need to make it using the online form
here http://www.frostillustrated.com/send...
Cheers
John
drjohngreensmith@mefreeforall.org
http://www.mefreeforall.org/2008-Jul...
with the others on the same subject.
Brilliant, personal account, strongly supported by firm scientific evidence. Just how it should be.
We have some quite similar medical history, Mary and very similar views about this dreadful illness. Do please keep writing.
The good news is that 2 of these writers have heard that they may be published. See, it works. Any more? Or some new blood maybe?
To remind you, the original News item is here
here http://tinyurl.com/6a6yfs
and if you have a reply, you need to make it using the online form
here http://www.frostillustrated.com/send...
Cheers
John
drjohngreensmith@mefreeforall.org
Wednesday, 9 July 2008
APPG on ME
MAY BE REPOSTED
All four transcripts of the presentations on child protection issues given to the July meeting of the All Party Parliamentary Group (APPG) on ME at the House of Commons are now available on the MEA website:
http://www.meassoci ation.org. uk/content/ view/603/ 70/
Summary of APPG meeting:
http://www.meassoci ation.org. uk/content/ view/601/ 70/
ENDS
All four transcripts of the presentations on child protection issues given to the July meeting of the All Party Parliamentary Group (APPG) on ME at the House of Commons are now available on the MEA website:
http://www.meassoci ation.org. uk/content/ view/603/ 70/
Summary of APPG meeting:
http://www.meassoci ation.org. uk/content/ view/601/ 70/
ENDS
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