Friday, 17 August 2007

ME

ME a word that has changed our world and life.

My aim in writing this blog is to raise much needed awareness of a devasting life limiting illness called ME.
Living with ME is a challenging battle every hour every day!!
All we can do is ' go with the flow'.
Our lives is not where we envisaged it to be but then again does anybody know what tomorrow will bring?????
I still wonder how we muddle through, and I find it difficult to cope with watching my young son's suffering and watching his life go by and his friends move on.
It is a very dark place to be!! Much darker for David!!

ME has brought many things into my world as a carer.. PAIN, FUSTRATION,ANGER, HOPELESSNESS, AND BELIEVE IT ARE NOT FRIENDSHIP!!!

How can I change something I have no control over??????????
How can I not feel Guilty????

If there is one thing to always live by, is that HOPE may seem hidden, but it never leaves your side. HOPE IS EVERYDAY!!!!

NEVER GIVE UP,ACCEPT YOUR LIMITATIONS BUT ALWAYS STRIVE TO DO YOUR BEST!!

Please feel free to leave comments.

Petition

And sign the petition: http://petitions.pm.gov.uk/ME-is-real/

Letter

www.meletterproject.com

Friday, 27 July 2007

27th October

Hi everyone almost 50 tables sold for Fundraising Event. Don't miss out!!!
I now have Vance and Linda Spence and Neil Abbott coming over for the event, they are doing tremendous research into ME!!

Tuesday, 24 July 2007

ME THE CURSE Paul's Documentary

http://video.google.co.uk/videoplay?docid=-5597775473582571000

This Documentary was made by David's older brother Paul to raise much needed awareness for ME!!!!

At the end of the documentary I said I am a support worker for the NIMEA, this is no longer the case due to personal views.

I still consider myself a support network for anyone out there suffering this terrible illness, so please do not hesitate to contact me if you feel the need!!!!!

Tuesday, 17 July 2007